Dr. Geeta Shroff Makes Headlines (And Other Amy News)

3 comments

Posted Thu, 2008/05/29 - 18:47 by Amy B. Scher

Filed Under: The India Story, Lyme Disease, Stem cells, Amy's journey

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Recent news has landed Dr. Geeta Shroff and patient, Perry Cross, on U.S. and Australian TV channels and all over the Internet.

Perry, a C-2 quadriplegic is breathing on his own for the first time in 14 years. Although many of Dr. Shroff's patients have gotten publicity in their hometowns, this one is receiving the nationwide (and beyond) attention it deserves.

Watch the news clip.

In "Amy news," I feel myself starting to emerge from the I-feel-a-little-like-crap fog that was looming over me. My joints are moving more freely, I'm less tired and as a result am definitely more calm than I was only a few days ago. I go back to see my Lyme doctor in a couple of weeks which will be my last visit before I return to India in July. Recent tests have proven that I did the right thing by discontinuing my antibiotic shots a bit early, as my kidneys are clearly not happy (they told me in lab test language).

Last week, a family member was diagnosed with late stage Lyme Disease and every co-infection possible. I have never seen lab results so positive for this complex of diseases than I have in his (adequate testing can be a huge challenge especially the longer someone has the disease). I suspected it but the results were jarring all the same. It's unreal to even anticipate someone you love so much going through the horror of something like this. But you can only hope it will be different for them, as each patient's symptoms and treatment are so varied.

As hard at it's been, I'm glad it happened in this order (me first). The Universe is constantly showing me that when I followed my heart to India for Dr. Geeta Shroff's embryonic stem cell treatment almost six months ago, I did the right thing. Every day, I learn of new hope that my journey has inspired in strangers from all over the world. But, I never in a million years could have imagined that I might some day inadvertently, save someone in my very own family.

Life never ceases to surprise me, and almost always, gratefully so.

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About Amy B. Scher

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A passionate author, pioneering patient, and sassy spirit with just enough sweetness to get me by, I live by my self-created motto: when life kicks your ass, kick back.Amy B. Scher's profile Amy B. Scher's blog

Comments

1

inspiration

Submitted by Nadine on Fri, 2008/05/30 - 18:20.

I was saddened to read that a family member also has Lyme. I guess the positive aspect is that you can provide guidance on what they will go through. As you mentioned before, you are paving the way and navigating the rough road for those who will venture the same path.

You continue to be a wonderful inspiration and I am honored to know you.

2

It's a small world

Submitted by Marci on Sun, 2008/06/01 - 04:48.

So small that 2 people in the same family can suffer from this same disease, eh? That's terribly and I am so sorry to hear it. Do you think your relative would consider stem cell therapy?

With every story that becomes public, I am more sure of Dr. Shroff's therapy and the blessing we have had of being a part of her journey. I am so glad you are doing better and can't wait to see you!

FYI, we spoke to Dr. Shroff this week and she said doing hyperbarics along with the stem cells at their present maturity is safe for them , so Will is back to that therapy as well. Not sure if that is something you'd do again, but thought I'd put that in this blog as a tidbit.

3

Not such a small world....

Submitted by Amy B. Scher on Sun, 2008/06/01 - 23:47.

Unfortunately, it's not rare at all for two or more (even all) the members of a family to have Lyme Disease. Usually, they live in the same area geographically or do activities together that are in high tick areas (camping, going to the beach, parks, etc.).

About hyperbarics.....I've had my fair share of treatments (almost 100) so I don't think I'd do it again, but that's really good to know. I'd think it would help the cells grow just because of how it works. I know Will is going to see more improvement soon!

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